Last Saturday, the 17th, I met others who’d suffered Transverse Myelitis. It was a huge day for me for many reasons, but not least because it was the first time I’d ever met anyone else with this rare illness. Not only that, I had also been invited to talk about the research I did into TM pain and coping as well as contribute to one of the workshops in the afternoon. It was an amazing experience and I’m so grateful to have been able to be a part of it.
It was nerve racking to talk directly after my own neurologist, Prof Young, but I felt my presentation went okay. Talking to non psychologists is difficult, but then talking and presenting to psychologists is difficult too, the two experiences are simply different. As nervous as I was though it was the good kind of nervous, the kind that has you being aware of every moment, success or failure. ^^
I want to keep in contact with as many people as possible, so I hope they either email me or see this wordpress blog and reply!
Looking forward to joining in with the Manchester support group too!